What the Behcets Syndrome Society Does
Aims of the Society
The Behçet’s Syndrome Society was formed in 1983 by Judith Buckle (1950-1997). Its main aims are:
- To provide information and support for people with Behçet’s disease and for those who care for them.
- To provide financial aid in hardship caused by Behçet’s disease.
- To foster education, collaboration and networking in the medical and allied professions with an interest in Behçet’s disease.
- To promote and assist with research into Behçet’s disease.
- To promote the formation of patient support groups and awareness of this rare disease amongst the appropriate influential institutions, authorities and decision-making bodies, and to provide them with detailed information about Behçet’s disease.
The Society has collecting boxes available for use in shops, pubs, places of work etc.
|Contacts and local groups
Members who wish to be put in touch with others can be given address lists of people in their area.
Grants policy – The Society will provide grants to help people who are in hardship because of Behçet’s disease.
|Helpline and counselling
The Society provides a telephone helpline for its members.
List of available factsheets. All these factsheets are available free of charge from the Society, and many can be downloaded here.
These are issued to members, usually four times yearly. They have contributions from members and items and announcements of general interest.
|Personal information service
Confidential information about symptoms, treatments, centres of expertise and availability of experts can all be given to people individually and privately either by the telephone helpline service, by email or by letter.
Buy a Behçet’s Syndrome Society cotton bag, T-shirt, pen, key ring or wristband.