International organisations

European Organisation for Rare Disorders (EURORDIS)

Promotion of rare disease research, access to new therapies, and participation of informed patients in policy-making.

96 rue Didot
75014 Paris
France
Tel: +33 1 5653 5210
Email: eurordis@eurordis.org
Website: www.eurordis.org

 

Rare Connect Behçet’s Syndrome Community

Rare Connect Logo

 

Rare Connect is a partnership of EURORDIS and NORD (National Organization for Rare Diseases). It provides a global forum for patients with rare diseases to connect with each other.

Website: http://www.rareconnect.org/en/community/behcet-s-syndrome

 

Turkey – Behçet’s disease and familial Mediterranean fever Patients Association

Purpose of association:

To create awareness.  To organize social and cultural activities and studies. To determine problems of patients with Behçet’s diseases and FMF and come up with some solutions and cures for their issues.  To inform relevant institutions and organisations about topics of study.

http://www.behader.org/