International organisations

European Organisation for Rare Disorders (EURORDIS)

Promotion of rare disease research, access to new therapies, and participation of informed patients in policy-making.

96 rue Didot
75014 Paris
Tel: +33 1 5653 5210


Rare Connect Behçet’s Syndrome Community

Rare Connect Logo


Rare Connect is a partnership of EURORDIS and NORD (National Organization for Rare Diseases). It provides a global forum for patients with rare diseases to connect with each other.



Turkey – Behçet’s disease and familial Mediterranean fever Patients Association

Purpose of association:

To create awareness.  To organize social and cultural activities and studies. To determine problems of patients with Behçet’s diseases and FMF and come up with some solutions and cures for their issues.  To inform relevant institutions and organisations about topics of study.