If you have Behçet’s, you could be eligible to take part in this clinical trial. Secukinumab in Behçet’s trial aim…
Category: Research
Online workshops: wellbeing & Behçet’s animation
Behçet’s UK are teaming up with Breathe Creative to offer online workshops that will bring participants with lived experiences of…
Webinar – RCPCH-BPSU: Behçet’s in children and young people
On 10 May 2021, the RCPCH and BPSU presented a live webinar on the findings from their 2017 study, funded…
Behçet’s Syndrome in children and young people in the United Kingdom & Republic of Ireland
Dr Clare Pain (Alder Hey), together with colleagues, have had their research published, as an advanced article in Rheumatology, Oxford Academic, charting the incidence and…
Patient Telemedicine Survey
The COVID–19 Global Rheumatology Alliance are asking for adult patients with a rheumatic disease or the parents/caregivers of a child…
Exploring medication adherence in Behçet’s Disease in the context of COVID-19: qualitative study
PhD Researcher, Behçet’s UK member, and Behçet’s patient Fay Sweeting is working with Dr. Emily Arden-Close at Bournemouth University to…
COVID-19 Patient Survey
Behçet’s Patients Support have been asked by their colleagues at the London Centre of Excellence to help with another survey.…
Genetic Alliance Patient Experience Survey
The new ‘Rare Disease Framework’, to replace the current UK Strategy for Rare Diseases, will shortly be launched. We all…
RAIRDA Survey – Please share your experiences during the Covid-19 outbreak
UPDATE 15/05/20 This survey has now closed but you can still contact RAIRDA to share your experiences. The Rare Autoimmune…
CONCORD Focus Group
COordiNated Care Of Rare Diseases (CONCORD) The CONCORD research team would like to find a few more people to take…