International Conference report

A full report of the 17th International Conference on Behçet’s Disease, which took place in Italy in September 2016, is available here.

February 19th, 2017

Behcet’s Syndrome Society – Annual Conference and AGM 2017 – Manchester

Register your free places and see more information here: Manchester 2017 Conference

February 14th, 2017

Helpline suspended

Unfortunately, the BSS Helpline is temporarily suspended whilst we update all Policies and Procedures.  We apologise for any inconvenience and hope to have it back up and running before too long.  Should you have a general admin query or would like general signposting or information, please email info@behcetsdisease.org.uk or call our admin line 0345 130 7328.

December 22nd, 2016

Personal Independence Payment (PIP) assessment review

Have your say on the PIP assessment process!

The Government began this consultation process just before the
summer holiday ‘Personal Independence Payment (PIP) assessment: second independent review call for evidence. The consultation closes on September 16th at 5pm.

August 18th, 2016

Article on genital ulcer severity and quality of life

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4579635/pdf/13023_2015_Article_341.pdf

 

August 16th, 2016

2016 AGM report

A report of the Annual Conference and AGM, which took place in October 2016, is now available here.

December 21st, 2015

Drug funding survey

Sioned Bourke, a PhD student at Bangor University, is undertaking some research into how the NHS funds expensive drugs for rare diseases. She is asking patients and their carers from the UK to complete an online survey to help with her research. Please click on the link below to access the Bangor University participation information page and survey (on the right).

http://goo.gl/e9CrWw

June 18th, 2015

BSS 2014 Conference and AGM

The 2014 Conference and AGM took place on Saturday 18 October. A report of the day is available from the following link: 2014 AGM report.

August 3rd, 2014

Referral Information to a Centre of Excellence

Please click on the following link for all the information you might need to get a referral, whether from the NHS England area or outside: Referral information July 2014.

July 29th, 2014

Neuro-Behçet’s disease – international research project

An international advisory group has developed clinical and practical guidelines on the key issues in the diagnosis and treatment of neuro-Behçet’s disease to assist clinicians involved in care of these patients. Follow this link to read an article about neuro-Behçet’s disease. Click on recommendations to download the paper published in the Journal of Neurology.

June 17th, 2014

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