The Behçet’s Syndrome Society has been established as a charity for over 30 years (Registered Charity No. 326679) and represents Behçet’s disease patients and their carers in the UK. Equally importantly, we exist for those not yet diagnosed with Behçet’s disease and those who think they may have Behçet’s disease.
London centre contact details
Behçet's Centre of Excellence,
GP Out of Hours,
The Royal London Hospital,
Liverpool centre contact details
Aintree Rehabilitation Day Centre,
University Hospital Aintree,
Birmingham centre contact details
Birmingham Centre of Excellence for Behçet's Disease,
Sandwell and West Birmingham Hospitals Trust,
Birmingham Midlands Eye Centre,
Have your say on the PIP assessment process! The Government began this consultation process just before the … summer holiday ‘Personal Independence Payment (PIP) assessment: second independent review call for evidence. The consultation closes on September 16th at 5pm.
Alexandra Boughey is a 3rd year psychology student. For her dissertation, she is looking at how symptom severity affects the life of people with Behçet’s disease, with the aim of publishing a paper to raise awareness. If you can help with this, please complete her survey at the following link: Behçet’s disease survey
Lianne Dobson, a Hygiene and Therapy student at Kings College Hospital, is undertaking a project on Behçet’s disease and how it can affect people’s oral health. If you would like to take part, follow the link below to see the questionnaire. http://svy.mk/1QhGZlY
Sioned Bourke, a PhD student at Bangor University, is undertaking some research into how the NHS funds expensive drugs for rare diseases. She is asking patients and their carers from the UK to complete an online survey to help with her research. Please click on the link below to access the Bangor University participation information […]