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Caring for those with a rare complex and lifelong disease
The Behçet’s Syndrome Society has been established as a charity for over 30 years (Registered Charity No. 326679) and represents Behçet’s disease patients and their carers in the UK. Equally importantly, we exist for those not yet diagnosed with Behçet’s disease and those who think they may have Behçet’s disease.
London
London centre contact details
Behçet's Centre of Excellence,
GP Out of Hours,
Ground Floor,
North Tower,
The Royal London Hospital,
Whitechapel,
London
E1 1BB
Liverpool
Liverpool centre contact details
Behçet's Clinic,
Aintree Rehabilitation Day Centre,
University Hospital Aintree,
Lower Lane,
Liverpool
L9 7AL
Birmingham
Birmingham centre contact details
Birmingham Centre of Excellence for Behçet's Disease,
Sandwell and West Birmingham Hospitals Trust,
Birmingham Midlands Eye Centre,
Dudley Road,
Birmingham
B18 7QH
Recent Initiatives:
Behcets Syndrome Society News
How the NHS England works
This new animation from @TheKingsFund shows how the NHS in England works. Watch it here
BSS Annual Report and Accounts 2017
Annual Report and Accounts 2017
Rare Revolution Magazine – Behcet’s article
Read June 17 edition of Rare Revolution Magazine here. The article on Behcet’s on page 38!
Volunteers urgently needed!
The Society Urgently Needs You …..Can You Help to Make a Difference? The current Trustees need to recruit more members to the Board to allow the Society to continue with its work. The Trustees have overall control of the Society and they use their skills and experience to actively help and support its everyday running. […]
BSS Annual Report and Accounts 2016
annual-report-and-accounts-2016
Personal Independence Payment (PIP) assessment review
Have your say on the PIP assessment process! The Government began this consultation process just before the … summer holiday ‘Personal Independence Payment (PIP) assessment: second independent review call for evidence. The consultation closes on September 16th at 5pm.
Article on genital ulcer severity and quality of life
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4579635/pdf/13023_2015_Article_341.pdf
Behçet’s disease survey
Alexandra Boughey is a 3rd year psychology student. For her dissertation, she is looking at how symptom severity affects the life of people with Behçet’s disease, with the aim of publishing a paper to raise awareness. If you can help with this, please complete her survey at the following link: Behçet’s disease survey
